WARNING!

WARNING! THIS SITE HAS PICTURES AND CONTENT OF A MEDICAL NATURE AND MAY NOT BE SUITABLE FOR EVERYONE. VIEW AT YOUR OWN DISCRETION.

ELIZABETH'S STORY

I created this blog to share my experiences with Oral Lichen Planus.

Though I could research the web and find a lot of medical and research information, I hoped I could find other people's stories. I knew they must be out there in the world somewhere, otherwise there would not have been all those medical articles mentioning patients! Though the articles were informative, they seemed impersonal to me.

At one point I had discovered a support group of sorts, but, I found it to have a lot of folklore treatments that people where sharing without having any scientific evidence that they worked. Still I hoped to be in touch with others who might want to share their experiences based upon sound medical treatments and useful complementary information. So, I found another site, but it was so difficult and not user friendly, that I gave up on it. Then I found a support group run by a medical organization. It's a very helpful site, but it's not one where OLP patients can communicate with one another directly. I didn't want to open another site to make a new support group, so that is why I created this blog. I simply wanted to document my OLP journey. Hopefully it will benefit others (you?) to know you are not alone. 

My Oral Lichen Planus journey began in 1995 when some white striations appeared inside my left cheeks. They didn't bother me, except for feeling the roughness of them with my tongue. Out of curiosity I asked my dermatologist to take a look. I was seeing her for Alopecia Areata. She took one look and told me what it was and gave me a prescription for a tube of medicine. I never got the prescription filled. I didn't see any point in spending money treating something that wasn't bothering me. I had no idea that the condition could worsen.

As a matter of fact, it didn't worsen, and sometimes it just plain disappeared. I never gave it any thought. Eight years later, towards the end of 2003, it never occurred to me that the strange formation on my tongue was the slightest bit related to the striations I once had. Aside from it appearing ugly, it seemed my tongue was a bit swollen.

This picture was taken about that time:



To read the rest of my story starting at the beginning, look at the list on the right side labeled "Blog Archive and click on 2004.


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The information provided on this site has been created as an online journal only. The author is writing from her personal viewpoint and cannot guarantee the completeness or accuracy of the information displayed.

Comments to any of the entries are appreciated.