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Monday, May 12, 2008

The research doctor called and asked me if I could come in next week to begin the trial. I had to tell her I had gone back on the prednisone, and wasn't 30 days past that. She then suggested I come in the first week of June. I went ahead and set up two appointments with her, but wonder if I will be "sick" enough for her trial. She explained to me that I only need to have a pain count of 3 on the scale of one to ten. It's hard for me to call that as I go from no pain, or no awareness of pain to suddenly through the roof with pain. It just creeps up on me. Then, it's pain all the time. So, I screwed myself for getting on the trial this month.

Erosive Oral Lichen Planus

Saturday, May 10, 2008

Since I have been coming down off the prednisone again, it's been having the effect of putting me into major panic attacks and anxiety. If I take tranquilizers all day long it might quell it. But, don't want to do that. I do take a little bit when it gets unbearable.

Aside from the anxiety, I feel well otherwise. Able to walk, my mouth sores are reasonably healed and GERD is fairly well controlled at the moment. But, still pretty much insomniac. I know I would be better if I could get some good regular sleep.

Erosive Oral Lichen Planus


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