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Friday, October 29, 2004

I have another appt at UCSF on Nov 10. The last specialist I saw there said I had four things going on, the OLP, plus candida, plus geographic tongue, plus immune system disorder. (Wouldn't they all be inter-related?) But, that person hesitated to give me any meds until I see this next specialist.

It is better than it was in the summer, but lots of sores and rawness inside still. Today I went with a friend to have lunch. I thought I could eat a hot turkey sandwich. I could. but got a mouth full of too-hot mashed potatoes. At home I would have spit it out into a napkin. In the restaurant I could do nothing but let it sit and burn my tongue. I don't have the ability to move my tongue quickly anymore, so I couldn't just flip it around until it cooled. Errrrgh!

I can sip a little ice water now, but cannot do full ice cubes or even ice cream, it burns just as if it was hot, too. And can't chew on crackers or toast. I wonder if I sound obsessed with food. More accurately, I am probably obsessed with my inability to enjoy food the way I used to. Every meal is frustrating, or painfully difficult.

I can eat spaghetti (my own recipe) if it is mild and I add a little sweetener. But cannot eat barbecue sauce or even pickles. Everything needs to be bland. You would think with all these drastic changes in diet that I would lose weight. Not an ounce!

Another OLP patient from a support group, told me that she uses a paper towel to dry off the inside of her mouth before applying the topical ointment. I used to just use my finger, but then got where I took a dry washcloth to blot some of the moisture off, first. Paper towel is better than what I was doing.

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